The Genetics Opinion app was developed in partnership with the Rare Disease Institute at Children's National Medical Center and the National Organization for Rare Disorders as a part of the Global Rare Disease Commission's initiative to facilitate quicker consultations for rare diseases with experts. This app is currently for physicians only. If you are a patient, please ask your care provider ab... - More info on Genetics Opinion...

Developed by the National Organization for Rare Disorders (NORD®), the IAMRARE® platform allows you to find and participate in available rare disease studies and registries. Whether you or your loved one has a rare disease, you can take surveys and contribute data that could help advance research. Built with patients and caregivers in mind, the IAMRARE platform allows you to: • Transition bet... - More info on NORD® IAMRARE®...

We don’t just talk about health, we live it. From mental health to chronic illness, disability, rare disease, parenting, neurodiversity, caregiving, and so much more, you’ll find the resources you need and the peer support you want on The Mighty, the world’s largest online health community. Health is hard, but it never has to be lonely. - Read stories written by people with first-hand healt... - More info on The Mighty...

If you’re suffering from a rare disease or chronic illness or a caregiver for someone who is, you’re not alone. Connect with other patients and caregivers, learn about your condition, and share your story on RareGuru. RareGuru is a free mobile app that connects caregivers, parents, and patients with similar rare diseases or symptoms. Take back control of your health and future by finding the ... - More info on RareGuru: Rare Disea...

Whether you are awaiting your child's arrival or your baby has just been born, a new or potential diagnosis can seem overwhelming. We are here to help. Connect with other parents of children with Down syndrome in our private, moderated online support groups. Find parents who have children in similar stages and with similar concerns so you can give and receive support through this unique parenting... - More info on DSDN Rockin' Parents...

Our mission is to connect and empower all FAers worldwide, and enable our meaningful participation in finding a cure for FA. - More info on The FA App - Power t...

For parents of autistic and neurodivergent kids, teens, and young adults, finding families who truly understand can feel impossible. Spectrum Circle was created to change that — a trusted resource built by parents, for parents. With six simple tabs, Spectrum Circle makes community easy: 1. Discover – Browse parent profiles, see who’s nearby, and start new connections. 2. Moments – Share p... - More info on Spectrum Circle...

The American Academy of Neurology's new official mobile app for conferences allows users to browse sessions, create a customized schedule, and access program slides and program evaluations to earn CME. - More info on AAN Conferences...